Birthday Girl
The Game Face
Look at the DINO!!
Also, check out my little DIVA! The picture says it all wouldn't you say?
Reece goes to the doc. today for his blood work. This will be the first time since the NICU that he has had blood drawn. I'll admit, I'm a little nervous. The Hematologist has been waiting until we needed blood work done to check his factor levels as well. This will also be the first time since we first found out he has Hemophilia that we check this. When he was born his levels were less that 1%. This is what puts him in the "severe" category. I'm not even going to let my self hope that this test will show anything different. Here is a description of the three levels of severity that I copied from the Nat. Hemophilia Associations website. I'll let you all know when the tests come back for both the allergy and the factor levels.
• People with mild hemophilia (6% to 49% factor level) usually have problems with bleeding only after serious injury, trauma, or surgery. In many cases, mild hemophilia is not discovered until an injury or surgery or tooth extraction results in unusual bleeding. The first episode may not occur until adulthood.
• People with moderate hemophilia, about 15% of the hemophilia population, tend to have bleeding episodes after injuries. They may also experience occasional bleeding episodes without obvious cause. These are called "spontaneous bleeding episodes."
• People with severe hemophilia, about 60% of the hemophilia population, have bleeding following an injury and may have frequent spontaneous bleeding episodes, often into the joints and muscles.
2 comments:
Have you hooked up with the local hemophilia chapter yet? If not you can get more info at 214-351-4595. We are having our Holiday party on the 2nd in Frisco.
I have a 5 yr. old w/severe hemo b and the chapter really has helped me a lot.
Thank you so much for the suggestion! We have not contacted a hemophilia chapter, but we are really interested in talking to some other parents for advice. Thanks again!
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