Port Surgery

We met with our wonderful Hematologist today and we were all in agreement that Reece will have his port surgery sometime early September. Since he has had two joint bleeds in the last 6 weeks she thinks we should also come in to their office (starting Thur) for factor treatments until the surgery. This will hopefully better our odds in preventing another bleed before we can get him on prophylaxis.

For the surgery, he will need to spend 3 nights there, then I can't remember, but I think she said we come back everyday for awhile, then every other until everyone is satisfied that mom and dad are okay doing the injections at home. I'm still a little gray on the particulars, but she did say that there are about 10 days where we will be submerged in this. She told us a couple horror stories on kids who had complications during or after surgery, but the benefits to doing this far out weigh the small percent of negatives. We are going to schedule a consultation with the surgeon asap, and hopefully set up his surgery for early September. Stay tuned for more details.