NHF Conference in Denver

Sorry it's taken me so long to post about our trip last week. You would think we were gone for a month as behind as I am on stuff.

The trip was really good. We left early Thur. morning so we were able to take our time and do some sight seeing for a couple of hours before the conference started that afternoon. We went to several wonderful sessions and really learned a lot. We also met several families who have been through way more than we have. I only thought we had things tough, but it sure put things into perspective for us after visiting with them. They were a wealth of knowledge and I know just where to go when things get tough for us.

The good news is, while we were out we got Reece's inhibitor test results back....they were negative thank goodness. We did find out though, that his half life is much faster than we initially thought. Basically, 4 hrs after his infusion all the factor is gone in his body. Our doc. doesn't want to change anything right now though. It seems to be doing some good, so until he starts having breakthrough bleeding we'll leave it at the 3 times a week. The infusions are also going really well for us. David and I are taking turns and Reece doesn't even budge anymore when we do it. Just pop in one of his movies and he's totally engrossed in that and doesn't even look at us while we stick him. Such a trooper!