Olivia's Thanksgiving Program

Olivia had her Thanksgiving program last Friday and she did SUCH a great job. Of course 5 min. before David and I were walking out the door to go, Reece fell face first into a plastic storage tote had cut his eye brown and had a nice shiner under the other eye. Luckily, now that we have his factor here at the house, David quickly infused him and off to the program we went. Without that ability here at home, that would have been a trip to the doc. office....whew!!

Back to the program. There was a quick slide show and a few songs, but Olivia sang and participated so well. I think last spring was the first time she actually participated in one of these, so we've come a long way. After the program we went back to her classroom for their Thanksgiving Feast. It was a fun time and she was so proud to show off her room and art work they have been working on. Here are some pics.

The Cowan Elves

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NHF Conference in Denver

Sorry it's taken me so long to post about our trip last week. You would think we were gone for a month as behind as I am on stuff.

The trip was really good. We left early Thur. morning so we were able to take our time and do some sight seeing for a couple of hours before the conference started that afternoon. We went to several wonderful sessions and really learned a lot. We also met several families who have been through way more than we have. I only thought we had things tough, but it sure put things into perspective for us after visiting with them. They were a wealth of knowledge and I know just where to go when things get tough for us.

The good news is, while we were out we got Reece's inhibitor test results back....they were negative thank goodness. We did find out though, that his half life is much faster than we initially thought. Basically, 4 hrs after his infusion all the factor is gone in his body. Our doc. doesn't want to change anything right now though. It seems to be doing some good, so until he starts having breakthrough bleeding we'll leave it at the 3 times a week. The infusions are also going really well for us. David and I are taking turns and Reece doesn't even budge anymore when we do it. Just pop in one of his movies and he's totally engrossed in that and doesn't even look at us while we stick him. Such a trooper!

Movie Night

We had sooo much fun last night on our family movie night. David has been trying to get us to do a movie night outside and use a projector to show the movie on the side of our house. Well, last night we finally decided to try it. We waited until Reece went to sleep at 7:30 and then we moved out to the drive way. We hooked up the computer and projector and got the movie up on the garage door. It was so fun! We blew up our air mattress for Olivia and got her sleeping bag and hot chocolate. David and I bundled up and sat in our camping chairs and snuggled in. It was really chilly last night, but it was lots of fun. We may try it on the back of our house next time since the neighbors outside lights made it a little too bright. It was just like going to a drive-in movie but at your own house. I think one of our neighbors found it a little amusing, but we loved it. We may have to invite some friends over next time and make it a big movie party.

On a separate note, David and I are leaving this Thur. for the National Hemophilia convention in Denver for a few days so I'll have an update after we return. The kids are staying with mom and dad, so it's not only a great learning opportunity for us, but also a mini vacation :o) I'm REALLY looking forward to it!

Halloween

Happy "Late" Halloween to everyone! We had a really good time last night. Since our neighborhood is so new, there aren't enough houses here to go to all the trouble to get the kids in their costumes. So went went to the neighborhood our friends Joe and Maryann to do some serious trick-or-treating. Maryann ordered a pizza for everyone and I brought some wine for the moms. We were gone only about an hour but Olivia got a basket and a half full of candy. We had to empty it in the bottom of the stroller because it was getting to heavy. The kids were so cute, the first few houses had dogs that the kids were able to pet, so every house after than they would say, "trick-or-treat, do you have a dog". Reece did great just hanging out in the stroller and taking it all in. He did crash when we got home though since it was about an house past his bed time.

Here are some pics from last night.